Monday, 7 November 2011

Sad Day

My dad was diagnosed with Alzheimer’s Disease about two years ago and since then the progress of the disease has been shockingly rapid, although looking back we realise he had the first signs of confusion, of something not being right, eight years ago. Last May my parents came to visit and stay with me for a few days, managing to negotiate the train journey from Bournemouth (not having done such a trip for forty years or more); today my mum decided she couldn’t cope any longer, and has booked dad into a room at a local care home with every expectation that he will not be back again.

Of course she feels appallingly guilty, but there isn’t any realistic alternative. She can’t manage, I and my sister can’t do it either, live-in help wouldn’t work, and dad now needs someone watching him all day and night. At Beech House he won’t be able to hurt himself or damage anything, and can either sit or wander as he wants, which is all he does at home. We will be able to take him out on walks and as the GP told my mum, ‘your relationship will actually improve’.

My relationship with my dad has never been terribly close, and the shame is that as I’ve got to an age and state in my life that I feel I could perhaps have got to know him better, that’s no longer possible. Despite not being a believer he was so proud when I was ordained, and I will try to remember that. Last year when mum had an accident and I had to stay and look after dad for a week was I think when I came to terms with the state he was in, so now I have a degree of equilibrium about it.

Doubt only sets in when I think about something that can’t be answered, which is the question of what is actually going on in his mind. Now and again I can have a short conversation with him that seems to make sense, before confusion takes over again, but what does confusion mean? Is it simply an inability to express or process thought, or is he really unaware of who is around him or where he is? He certainly seems to have forgotten after a couple of days back home after his last period of respite care that he was ever away. What is it really like for him? He can’t tell us.

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